Woop Woop, Walking on the Moon

Literally I'm on cloud nine, it's weird I know, to be so happy about surgery and to be told you need it. But I was scared to death that they could of turned round and said we don't think it's the joint or femur itself, we think more phsyio or more exercising will cure it, and that I've not tried hard enough to correct it myself.

So to hear that NO amount of waiting or rehabbing is ever going to make it feel better was music to my ears. I feel validated once again, that it's not all in my head like GPs love to say, or your family may think? The steroid confirmed that it is a Bone/Joint issue and there are ways to correct it.

They are thinking of breaking the femur at the top near the ball part of the Hip Joint and twist it around so the Cam Impingement part will be removed so it no longer catches on the socket,a nd once again plated and screwed together. But this way it is far less than what ever was talked about earlier, and the recovery shouldn't be half as bad. So I'm looking forward to it, This steroid has shown me what life could be like pain free, and hinderance free.

I have lots of Jewellery to create to keep me nice and busy, especially for Christmas presents, I'm trying to do a Handcrafted Christmas once again, buying and swapping with crafty friends. It feels better this way, my friends and I gain from it in more ways than one, I can shop from home and it's so nice to know your helping out others, their confidence and esteem, and being greener for the planet as most things are upcycled, or recycled.

Looking at just before Christmas for the Surgery Date, So fully taking this opportunity of waiting to build up the strength and stamina in the Left hip, so it can become the new 'Good' Hip and be able to carry me, once the right hip is operated on. To shift some pounds in weight to certainly help out too, as it's super hard to control weight issues when your so immobile. I'm determined to not been on toe weight bearing for 6 months like last time, and certainly I want to recover as fast as possible this time round. It's time to move on with our lives, get all these hips and joints behind us and go forward with a spring in our step and a new lease on life.......

Just gotta do the surgery, and then the journey begins

Woop Woop, Walking on the Moon

Literally I'm on cloud nine, it's weird I know, to be so happy about surgery and to be told you need it. But I was scared to death that they could of turned round and said we don't think it's the joint or femur itself, we think more phsyio or more exercising will cure it, and that I've not tried hard enough to correct it myself.

So to hear that NO amount of waiting or rehabbing is ever going to make it feel better was music to my ears. I feel validated once again, that it's not all in my head like GPs love to say, or your family may think? The steroid confirmed that it is a Bone/Joint issue and there are ways to correct it.

They are thinking of breaking the femur at the top near the ball part of the Hip Joint and twist it around so the Cam Impingement part will be removed so it no longer catches on the socket,a nd once again plated and screwed together. But this way it is far less than what ever was talked about earlier, and the recovery shouldn't be half as bad. So I'm looking forward to it, This steroid has shown me what life could be like pain free, and hinderance free.

I have lots of Jewellery to create to keep me nice and busy, especially for Christmas presents, I'm trying to do a Handcrafted Christmas once again, buying and swapping with crafty friends. It feels better this way, my friends and I gain from it in more ways than one, I can shop from home and it's so nice to know your helping out others, their confidence and esteem, and being greener for the planet as most things are upcycled, or recycled.

Looking at just before Christmas for the Surgery Date, So fully taking this opportunity of waiting to build up the strength and stamina in the Left hip, so it can become the new 'Good' Hip and be able to carry me, once the right hip is operated on. To shift some pounds in weight to certainly help out too, as it's super hard to control weight issues when your so immobile. I'm determined to not been on toe weight bearing for 6 months like last time, and certainly I want to recover as fast as possible this time round. It's time to move on with our lives, get all these hips and joints behind us and go forward with a spring in our step and a new lease on life.......

Just gotta do the surgery, and then the journey begins

Normal?

Can I ever be classed as normal? Well if I ever could, then I think I'm pretty close too it now. The hips are behaving, even the Rightie and the shoulders are settling down a bit too. The mental madness and tears etc.. are fading now thankfully.

It's super tempting to exercise and do lots of things, but when I do try, I'm shown that I'm not as cured as I think I am but still 100% better than I was before if that makes any sense. I've been doing the O'Hara chair exercises 10 mins ever 2 days, I'd love to do it every day but I need to pace myself, as these ware me out and make me sore regardless of painkillers took. So instead of totally over doing it like I normally do, but pace and leave energies in reserve.

The Hypermobility has flared up in the shoulders, but I've read that the steroid can cause it too flare up and cause issues when patients are down and depressed too, so it explains it and gives me hope that it will settle down once the steroid eases out my system as well.

Well it's been 4 weeks post op now and time has admittedly flown by, with buying school uniform and planning the kids holiday. Oh and of course the riots too!

Found some amazing bloggers against the ATOS medical group, in a name and shame blog I've submitted by own atos story, and I've found help on twitter and forums. Get in touch with me if you want to know more, or need any help regarding the Atos medical assessments.

http://enchantednails@hotmail.com and I will endeavour to help in anyway I can.

Normal?

Can I ever be classed as normal? Well if I ever could, then I think I'm pretty close too it now. The hips are behaving, even the Rightie and the shoulders are settling down a bit too. The mental madness and tears etc.. are fading now thankfully.

It's super tempting to exercise and do lots of things, but when I do try, I'm shown that I'm not as cured as I think I am but still 100% better than I was before if that makes any sense. I've been doing the O'Hara chair exercises 10 mins ever 2 days, I'd love to do it every day but I need to pace myself, as these ware me out and make me sore regardless of painkillers took. So instead of totally over doing it like I normally do, but pace and leave energies in reserve.

The Hypermobility has flared up in the shoulders, but I've read that the steroid can cause it too flare up and cause issues when patients are down and depressed too, so it explains it and gives me hope that it will settle down once the steroid eases out my system as well.

Well it's been 4 weeks post op now and time has admittedly flown by, with buying school uniform and planning the kids holiday. Oh and of course the riots too!

Found some amazing bloggers against the ATOS medical group, in a name and shame blog I've submitted by own atos story, and I've found help on twitter and forums. Get in touch with me if you want to know more, or need any help regarding the Atos medical assessments.

http://enchantednails@hotmail.com and I will endeavour to help in anyway I can.

AAAAaaaaRRrrrrrrGGGGggggHHHhhhhh!

What hell this recovery is!, It's now officially 2 weeks since the mini op and the steroid (Kenalog) injection and I have been through the mill.

I have discovered I've got 8 of the 15 possible side effects, Lol Some ranging from Mental problems (low moods, manic behaviour and suicidal thoughts)

To stomach pains, Irregular periods,Headaches, Eye problems, Increased appetite, Feeling bloated, Exhaustion and Bone aches. So thankfully I now know it's not all in my head like I was beginning to think.

Sadly you have to just suffer them, but it does make me feel better to know there is a reason behind it all, and that they will ease off soon. It also explains why the shoulders have been really bad this last week.

Had an amazing Birthday though regardless and I think the steroid is starting to work, Fingers crossed xx

AAAAaaaaRRrrrrrrGGGGggggHHHhhhhh!

What hell this recovery is!, It's now officially 2 weeks since the mini op and the steroid (Kenalog) injection and I have been through the mill.

I have discovered I've got 8 of the 15 possible side effects, Lol Some ranging from Mental problems (low moods, manic behaviour and suicidal thoughts)

To stomach pains, Irregular periods,Headaches, Eye problems, Increased appetite, Feeling bloated, Exhaustion and Bone aches. So thankfully I now know it's not all in my head like I was beginning to think.

Sadly you have to just suffer them, but it does make me feel better to know there is a reason behind it all, and that they will ease off soon. It also explains why the shoulders have been really bad this last week.

Had an amazing Birthday though regardless and I think the steroid is starting to work, Fingers crossed xx

Surgery Update

Well it's been just over a week since the Mini OP and physically the recovery is going well, the Right hip is still niggly and aches like a toothache, I really hope it goes soon otherwise this does mean surgery wont work. And i have no idea what we can possibly do then, as a lifetime of this hip pain with no action plan scares me to death! Way more than facing a surgery and recovery period.

But man, No-one ever ever told me how this Kenalog steroid was going to affect me mentally and emotionally. I've been on a total rollercoaster since, i look fine and i guess everyone thinks i'm fine and treat me accordingly, so no help around the house (except Hubby, Or begrudingly awful stressful help from teen), still have to listen to bickering kids 24/7 now it's the holidays. So no-one gives you any leeway to be a liitle messed up inside, tearful and overwhelmed by it all. Which i will admit has hit me hard, I'm finding myself crying at ridiculous things, my temper is 0 to 60 in meer seconds and i know it's ALL me, so it must be the steroid. So i checked out the side affects and yep! They were listed, in fact so was Round Face (Lol sounds funny, until you read it can affect you months after the steroid injection! Eek!) So i've had to try and explain to kids that although i look fine, I'm actually not and too ignore me. They shouldn't fine the ignoring bit hard, they ignore me pretty well when i ask for housework help!

To top off our stress levels, we have recently failed our ESA medical held by ATOS once more (i knew i would, i failed before when i was days away from the whole Triple Pelvic and Femur surgeries lol As if you can look for a job while you can't even walk) So it's back to the stress of medical certs every 4 weeks from the Gp's and waiting for a tribunal date (probably 18months away) I've asked O'Hara to write a letter again if possible as he did last time and i'm sure we won our case by a landslide because of that letter.

Anyways guys, It's annoying not being able to work the hip and see if i can do physio until 13th Sept. Really hard to try to rest it, I want to be able to do physio and workout and work. Hate being at home more than anything!! But the Kenalog says i must not work the hip in case i can do more than i should do due to it's pain relief (if that ever kicks in).

Happy Healing guys Love you all xx