Tuesday, 29 September 2015

Hip Update and possible Radio Frequency Denervation

Recently I have been focusing solely on Physio with the view to finally get off the walking stick permanently, and to come off painkiller medication permanently too. But following months and months of intensive Physio weekly at the local Hospital, I have realized this is simply not possible, nor will it ever be possible while PAIN is at the forefront of my mind 24/7. I can't escape it, it's dulling my senses, spoiling my will to live and rots any happiness I dare to have. In October the Surgeon is expecting me to decide whether or not I will have Hip Replacements or not, and I think I've decided NOT, for now anyways.I can't face anymore Surgeries and Recoveries, as for the last 7yrs have been nothing but Surgeries and Recoveries. It's time to try and live like a 'Normie' for once!! Plus my Physiotherapist recommends I do at least another 1yr of weekly intensive Physio and then decide. But that's all well and good, but PAIN is always there, like a bad smell, hanging over me, fogging my mind and depressing me.

So I either accept that Tramadol will have to be a permanent fixture daily, this is just to simply move around doing daily living chores like most people take for granted. Or don't take them and accept that I'm never ever just going to be able to pop outside to shop with friends, or visit a cinema etc... with PAIN looming over my head. So I've decided that Tramadol it is, as even this doesn't actually remove the Pain, more like it simply helps me deal with it and not focus on it as much. I tried Codeine but that doesn't sit well on my stomach, it gives me crippling cramps, and makes me feel sick. Ibuprofen and Paracetamol are not strong enough and I've tried these many times to no avail.

I try to walk without a walking stick as much as I can, without loosing form. But as soon as I feel myself waddling a bit, I whip the stick out, as it's not worth forming bad habits and undoing the great work the Physiotherapist has done with me. So to do walking without aids I HAVE to resort to Tramadol. So thats where I am with my recovery so far. Metal was removed in Feb 2015 and 7mths post op I'm not exactly where I want to be, but nor am I where I was, so it's all progress......

Recently following a good ole moan fest on a Hippie page on Facebook, a lady recommended RADIO FREQUENCY DENERVATION as I was complaining that structurally my hips are fabulous, but painwise they hinder any progress, so if I could remove the pain, I'm sure I could progress faster and stronger, and build on my stamina. So I'm going to ask the Surgeon about it. As far as I can gather they put you under anesthetic and with an xray to guide them, they use an small instrument to insert at the Pelvis and burn/freeze off the nerve endings in the offending area, and it can give you a possible pain free 2mths to 3yrs time, surely this has to be worth looking into?! Or even asking about Anti-Epileptic medication such as Gabapentin to help block the nerve pain and thus giving me more freedom to workout the joint without fear of aggravating the joint and suffering for days and days on end afterwards.

So thats me at the moment, I'm great and not great all at the same time!! My mind says Go Go Go my body says NO No No and it's frustrating and depressing. Back in 2009 when I had the first REAL serious Triple Pelvis Ost and Femur Ost I never thought for one minute I would be still sat with the same pain driving me insane, and still using a walking stick. I'm down 8 surgeries and it still nags like a Bi@tch!!  Still time is a great healer they say, and in surgery terms it is still early days at 7mts post op, so a lot can and will happen in 1year. But I think it pays to be honest about your expectations and be realistic as to what is really achievable following these surgeries. Yes I am a LOT better than I was in 2009, but I have issues still and different things are thrown into the mix, that I was never prepared for. Looking back I would do it all the same again, as really honestly I have no choice but to try and gain my life back painfree and limpfree.

Hip Update and possible Radio Frequency Denervation

Recently I have been focusing solely on Physio with the view to finally get off the walking stick permanently, and to come off painkiller medication permanently too. But following months and months of intensive Physio weekly at the local Hospital, I have realized this is simply not possible, nor will it ever be possible while PAIN is at the forefront of my mind 24/7. I can't escape it, it's dulling my senses, spoiling my will to live and rots any happiness I dare to have. In October the Surgeon is expecting me to decide whether or not I will have Hip Replacements or not, and I think I've decided NOT, for now anyways.I can't face anymore Surgeries and Recoveries, as for the last 7yrs have been nothing but Surgeries and Recoveries. It's time to try and live like a 'Normie' for once!! Plus my Physiotherapist recommends I do at least another 1yr of weekly intensive Physio and then decide. But that's all well and good, but PAIN is always there, like a bad smell, hanging over me, fogging my mind and depressing me.

So I either accept that Tramadol will have to be a permanent fixture daily, this is just to simply move around doing daily living chores like most people take for granted. Or don't take them and accept that I'm never ever just going to be able to pop outside to shop with friends, or visit a cinema etc... with PAIN looming over my head. So I've decided that Tramadol it is, as even this doesn't actually remove the Pain, more like it simply helps me deal with it and not focus on it as much. I tried Codeine but that doesn't sit well on my stomach, it gives me crippling cramps, and makes me feel sick. Ibuprofen and Paracetamol are not strong enough and I've tried these many times to no avail.

I try to walk without a walking stick as much as I can, without loosing form. But as soon as I feel myself waddling a bit, I whip the stick out, as it's not worth forming bad habits and undoing the great work the Physiotherapist has done with me. So to do walking without aids I HAVE to resort to Tramadol. So thats where I am with my recovery so far. Metal was removed in Feb 2015 and 7mths post op I'm not exactly where I want to be, but nor am I where I was, so it's all progress......

Recently following a good ole moan fest on a Hippie page on Facebook, a lady recommended RADIO FREQUENCY DENERVATION as I was complaining that structurally my hips are fabulous, but painwise they hinder any progress, so if I could remove the pain, I'm sure I could progress faster and stronger, and build on my stamina. So I'm going to ask the Surgeon about it. As far as I can gather they put you under anesthetic and with an xray to guide them, they use an small instrument to insert at the Pelvis and burn/freeze off the nerve endings in the offending area, and it can give you a possible pain free 2mths to 3yrs time, surely this has to be worth looking into?! Or even asking about Anti-Epileptic medication such as Gabapentin to help block the nerve pain and thus giving me more freedom to workout the joint without fear of aggravating the joint and suffering for days and days on end afterwards.

So thats me at the moment, I'm great and not great all at the same time!! My mind says Go Go Go my body says NO No No and it's frustrating and depressing. Back in 2009 when I had the first REAL serious Triple Pelvis Ost and Femur Ost I never thought for one minute I would be still sat with the same pain driving me insane, and still using a walking stick. I'm down 8 surgeries and it still nags like a Bi@tch!!  Still time is a great healer they say, and in surgery terms it is still early days at 7mts post op, so a lot can and will happen in 1year. But I think it pays to be honest about your expectations and be realistic as to what is really achievable following these surgeries. Yes I am a LOT better than I was in 2009, but I have issues still and different things are thrown into the mix, that I was never prepared for. Looking back I would do it all the same again, as really honestly I have no choice but to try and gain my life back painfree and limpfree.

Saturday, 23 May 2015

#AccessAllASOS Summer is Nearly Here!! Festivals, BBQ's and Ibiza Baby!!

 

Yay!! Summer is nearly here! And I love it, the Warm Air, Blue Skies and BBQ's Aroma's whats not to like? Well I guess wasps and mozzie's but Hey, not bad really!! Open Air Music Festivals and Happy Smiley Faces make Summer my favorite season. And this year, I plan to do as much as my Disability allows, Physio is really helping and all the commitment I've given it over the Winter, is starting to pay off. I'm Slimmer, more Toned, and Lighter (which the Hips will really benefit from if I'm honest) and Hips are getting more 'normal' Not Pain Free by any stretch, or even walking unaided, but definitely an improvement, which I hope continues...

So with new body shape, comes the Fashion? What can I wear for the Summer this year? Scars still an issue, as in they are so big I can't hide them, and I can't hide the dents and lumps that surgery behind the scars create either. So Planning ahead, I use a Tanning Lotion, Usually I use this Tanning lotion

Which for Casper Ghostly white skin like mine is perfect, and it hides the scars too a bit. Not an easy thing to do when they range from 12inches to 4inches. But spotted this cheeky number on Asos it's called Cheeky 'Turn Me On'  Gradual Tan and it's £12.00 for 200ml and looks like this.
and you can find it here
Or for the cheaper alternative but still just as cute and quirky there is No More White Bits, Instant Self Tan Mousse and that is £4.00 for 200ml. And it looks like this.
And you can find it here.
But as that is an Instant one rather than Gradual, I'm leaning more towards the Cheeky one, as I prefer the Gradual Tans that seem to wear longer and cover better on me. So Tan sorted now for some Clothes.... Looking on Asos I can see I'm lusting after 








From top to toe, You can be Summer Ready, and Rocking the Latest Looks from Asos so what are you waiting for.......

#AccessAllASOS #Festival #Summer #Ibiza #Beauty #BBloggers #Hippie #Spiritual #EDM #Music #Gathering #PLUR #Raver #Eivissa #Holiday #Spoonie #Asos #Fashion #Shoes #70's #Clubber #Shopping #SBSWinner #MysticMoon

#AccessAllASOS Summer is Nearly Here!! Festivals, BBQ's and Ibiza Baby!!

 

Yay!! Summer is nearly here! And I love it, the Warm Air, Blue Skies and BBQ's Aroma's whats not to like? Well I guess wasps and mozzie's but Hey, not bad really!! Open Air Music Festivals and Happy Smiley Faces make Summer my favorite season. And this year, I plan to do as much as my Disability allows, Physio is really helping and all the commitment I've given it over the Winter, is starting to pay off. I'm Slimmer, more Toned, and Lighter (which the Hips will really benefit from if I'm honest) and Hips are getting more 'normal' Not Pain Free by any stretch, or even walking unaided, but definitely an improvement, which I hope continues...

So with new body shape, comes the Fashion? What can I wear for the Summer this year? Scars still an issue, as in they are so big I can't hide them, and I can't hide the dents and lumps that surgery behind the scars create either. So Planning ahead, I use a Tanning Lotion, Usually I use this Tanning lotion

Which for Casper Ghostly white skin like mine is perfect, and it hides the scars too a bit. Not an easy thing to do when they range from 12inches to 4inches. But spotted this cheeky number on Asos it's called Cheeky 'Turn Me On'  Gradual Tan and it's £12.00 for 200ml and looks like this.
and you can find it here
Or for the cheaper alternative but still just as cute and quirky there is No More White Bits, Instant Self Tan Mousse and that is £4.00 for 200ml. And it looks like this.
And you can find it here.
But as that is an Instant one rather than Gradual, I'm leaning more towards the Cheeky one, as I prefer the Gradual Tans that seem to wear longer and cover better on me. So Tan sorted now for some Clothes.... Looking on Asos I can see I'm lusting after 








From top to toe, You can be Summer Ready, and Rocking the Latest Looks from Asos so what are you waiting for.......

#AccessAllASOS #Festival #Summer #Ibiza #Beauty #BBloggers #Hippie #Spiritual #EDM #Music #Gathering #PLUR #Raver #Eivissa #Holiday #Spoonie #Asos #Fashion #Shoes #70's #Clubber #Shopping #SBSWinner #MysticMoon

Saturday, 25 April 2015

8 week Post Op Check Up Xray Results

Well it's now 9weeks Post Op, and last week at 8weeks Post Op I had my Xray appointment to see if all was well, and to get the Surgeon's opinions. Also it was a chance for me to plead my case and request Physio back at Cannock and request Kelly as she is amazing!

Xray was perfect, everything healing as it should be. I asked about Kelly, and I think he believes I dont really need Physio anymore, but agreed to it as I said about the Groin/Deep Inner Hip Flare ups I have. So he tested the stability of the Joint, and Muscles surrounding the Hip, the waddle is caused from seriously weak Glutes and not just the Bum Glutes, which causes me to lean on the operated side, and swing the Leg out. So he showed me the Chair Exercises that O'Hara had previously shown me. Like One Legged Squats they are over a Chair. You have to go as slowly as possible, so they engage each and every muscle. I will need a Walking Stick or Crutch to keep me straight. These are incredibly difficult and tiring, so better to do 5 reps of excellent quality, than 10 reps and improper form.

But the worst news, or could be good news, Depends how you view things, The Hip Groin Flare Ups are indicating that it is the Joint inself, Meaning that a Hip Replacement is needed rather than it going by itself. But as I'm doing ok, unless I aggravate the Joint by doing impact exercises (ie jump, skip, jog, kick) I'm going to put the Hip Replacement Op off for as long as possible. See if Physio and good pain management will get me a few years. As I think the family need a break from surgeries, and recoveries and me being stuck in all day every day.

Hip Replacement Xray Below, Not Mine but a Reference so you can see what one looks like


Obviously should the Pain start to hinder my daily life and I can't return to Normal 'daily' activities, such as getting onto a Bus, walking round town, Getting a job, snowboarding etc, then I will go forth with the surgery as soon as possible. But as it's early days yet from having screw removal surgery, I have to allow the muscles, tendons and joint time to settle down and repair.

Here is info on the Hip Replacement via Birmingham Hip Clinic, O'Hara as he is the one I would go to see again. Click Here For Info


8 week Post Op Check Up Xray Results

Well it's now 9weeks Post Op, and last week at 8weeks Post Op I had my Xray appointment to see if all was well, and to get the Surgeon's opinions. Also it was a chance for me to plead my case and request Physio back at Cannock and request Kelly as she is amazing!

Xray was perfect, everything healing as it should be. I asked about Kelly, and I think he believes I dont really need Physio anymore, but agreed to it as I said about the Groin/Deep Inner Hip Flare ups I have. So he tested the stability of the Joint, and Muscles surrounding the Hip, the waddle is caused from seriously weak Glutes and not just the Bum Glutes, which causes me to lean on the operated side, and swing the Leg out. So he showed me the Chair Exercises that O'Hara had previously shown me. Like One Legged Squats they are over a Chair. You have to go as slowly as possible, so they engage each and every muscle. I will need a Walking Stick or Crutch to keep me straight. These are incredibly difficult and tiring, so better to do 5 reps of excellent quality, than 10 reps and improper form.

But the worst news, or could be good news, Depends how you view things, The Hip Groin Flare Ups are indicating that it is the Joint inself, Meaning that a Hip Replacement is needed rather than it going by itself. But as I'm doing ok, unless I aggravate the Joint by doing impact exercises (ie jump, skip, jog, kick) I'm going to put the Hip Replacement Op off for as long as possible. See if Physio and good pain management will get me a few years. As I think the family need a break from surgeries, and recoveries and me being stuck in all day every day.

Hip Replacement Xray Below, Not Mine but a Reference so you can see what one looks like


Obviously should the Pain start to hinder my daily life and I can't return to Normal 'daily' activities, such as getting onto a Bus, walking round town, Getting a job, snowboarding etc, then I will go forth with the surgery as soon as possible. But as it's early days yet from having screw removal surgery, I have to allow the muscles, tendons and joint time to settle down and repair.

Here is info on the Hip Replacement via Birmingham Hip Clinic, O'Hara as he is the one I would go to see again. Click Here For Info


Sunday, 8 March 2015

Journey So Far, 18 days post op

Well time for another update I guess, Day 18 Post Op and all is going well. I've just about semi ditched using one crutch around the house, I alternate from One Crutch to using nothing in the house. But I dont have stairs so this greatly helps! Outside I'm comfortable with One Crutch but not confident enough yet to use walking stick or try without anything.
Saw the Nurse at 14 days Post Op for wound check, she said the stitches had gone except for one knot, But the tugging and touching admittedly made me feel queasy and sore. So that day I didn't do much, funny how just going outside can really take it out of you.

As you can see it's healing well, But there's a knot that will need snipping if not dissolved by the third week. But seems daft to go and see them for that, when we know what we are doing, so Hubby kindly snipped the long knot off, so it should release the skin a bit more now.

As you can see it's really good healing, caused no bother or been inflamed. So feeling rather lucky and blessed. I've also removed the TED Stockings as I'm doing the physio exercises (basic ones) every other day, and I'm active around the house, and most definitely fully weight bearing.


So all in all I'm feeling pretty good, Though when I walk outside for a bit the dreaded Groin Pain returns (I had hoped it was the screw aggravating it) But it may not be?! Anyways I can't do much now until my Post Op appointment and Xray, usually around 6 weeks. But mine was due at 12 weeks, so I rung to ask if I could re-instate my physiotherapist and the program and they said as I'd had surgery they couldn't, until the Xray confirmed bone was healing from screw holes, and the Surgeon needs to refer me to them. On hearing this I was sad that my appointment was 12 weeks, thinking that is a long time to be away from my Physiotherapist and the program she devised for me that is actually working!! so Rung the Hospital and now have an earlier Post Op Appointment, it's going to be 8 weeks Post Op but it's better than what I had.

So from this Survivor I bid you Hippie Healing Hugs xx